TY - JOUR T1 - Living with long Covid: some reflections 14 months down the line JF - Evidence Based Nursing JO - Evid Based Nurs SP - 69 LP - 70 DO - 10.1136/ebnurs-2021-103449 VL - 24 IS - 3 AU - Alison Twycross Y1 - 2021/07/01 UR - http://ebn.bmj.com/content/24/3/69.abstract N2 - As I write this editorial, it is almost 14 months since I first developed COVID-19 symptoms and my journey with long COVID-19 continues. In their guideline on long COVID-19 NICE/SIGN define post-COVID-19 syndrome as signs and symptoms that develop during or after a COVID-19 infection, continuing for more than 12 weeks, and not explained by an alternative diagnosis. More information about long COVID-19 can be found in the blog written by @jakesuett and me in September 2020. Data from the Office for National Statistics in April 2021 estimated that 1.1 million people in the UK reported experiencing some form of long COVID-19 symptoms. Despite this, the UK Government continues to focus on the outcomes of COVID-19 being binary: dying or surviving. Box 1 provides details about some useful sources of information on long COVID-19.Box 1 Useful sources of information about long CovidNICE/SIGN rapid guideline published in December 2020.The NIHR review of evidence: living with Covid-19—second Review (March 2021).Paper in nature in April 2021 provides a summary of how post acute Covid-19 (long Covid) can affect different organ systems.Paper published in March 2021 describing the range of signs … ER -