TY - JOUR T1 - Parents experienced cycles of defining and managing adversity in caring for a child with a chronic progressive illness JF - Evidence Based Nursing JO - Evid Based Nurs SP - 28 LP - 28 DO - 10.1136/ebn.1.1.28 VL - 1 IS - 1 A2 - , Y1 - 1998/01/01 UR - http://ebn.bmj.com/content/1/1/28.abstract N2 - Gravelle AM. Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity. J Adv Nurs 1997 Apr; 25 : 738 –45. OpenUrlCrossRefPubMedWeb of Science To describe parents' day to day experiences as they manage their child's chronic, life threatening, progressive illness.Phenomenology.Community study in British Columbia, Canada.11 parents (5 mothers and 3 couples; 1 mother divorced, all others married) of 8 children volunteered through the Muscular Dystrophy Association of Canada and 2 community health departments. Children were 2.2–16 years old; lived at home; and had Duchenne's muscular dystrophy, spinal muscular atrophy type II, metachromatic leucodystrophy, Rett's syndrome, or cerebral palsy with microcephaly and respiratory distress. The children were not in the terminal phase of illness, but required specialised and time consuming care.Parent interviews occurred … ER -