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Quality of life research for people with intellectual disabilities should include people with intellectual disabilities as coresearchers
  1. Melissa L Desroches
  1. Community Nursing, University of Massachusetts Dartmouth, Dartmouth, Massachusetts, USA
  1. Correspondence to Dr Melissa L Desroches; MDesroches{at}umassd.edu

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Commentary on: Holmes HM, Mortenson WB. What makes life better or worse: Quality of life according to people with intellectual disabilities. J Intellect Disabil Res. 2024 Sep;37(5):e13280. doi: 10.1111/jar.13280

Implications for practice and research

  • Person-centred care guided by what is meaningful to the person and free from assumptions and biases supports quality of life.

  • Quality of life research in intellectual disabilities would benefit from adoption of inclusive research principles.

Context

The quality of life paradigm for people with intellectual disabilities emerged more than 40 years ago to improve well-being of people with intellectual disabilities and their families and to guide in planning and evaluating services and supports.1 2 During the same timeframe, inclusive research or research in which people with intellectual disabilities are part of the doing of research, as opposed to having research done …

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Footnotes

  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer-reviewed.