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Commentary on: Delaney, A. E., Fu, M. R., Conway, C., Marshall, A. C., Lindberg, J., Thiagarajan, R. R., Glazer, S.2024,. Financial Stressors for Parents of Children and Emerging Adults with Congenital Heart Disease: A Qualitative Study. Journal of Pediatric Health Care.
Implications for practice and research
Enhanced financial counselling and support services, coupled with strong advocacy for policy reforms, are essential to alleviate the financial burden on families of children with congenital heart disease.
Future research should explore long-term financial impacts and effective interventions to alleviate economic stress.
Context
Congenital heart disease (CHD) is the most prevalent birth defect that significantly affects infant and child mortality and morbidity.1 2 While medical advancements have extended the survival of children with CHD into adulthood, the financial burden on parents remains a growing concern. Indirect evidence links this to stress and family disruption due to a …
Footnotes
Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.
Competing interests None declared.
Provenance and peer review Commissioned; internally peer reviewed.