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Research made simple
Using creative methods of engagement to facilitate the inclusion of children and young people with diverse needs in research
  1. Alison Rodriguez1,
  2. Michael J Tatterton2,3,
  3. Joanna Smith4,5
  1. 1Health Care, University of Leeds School of Healthcare, Leeds, UK
  2. 2School of Nursing and Healthcare Leadership, University of Bradford, Bradford, UK
  3. 3Bluebell Wood Children's Hospice, North Anston, UK
  4. 4Department of Nursing and Midwifery, Sheffield Hallam University, Sheffield, UK
  5. 5Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK
  1. Correspondence to Dr Alison Rodriguez; a.m.rodriguez{at}leeds.ac.uk

https://doi.org/10.1136/ebnurs-2024-104161

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    There is a growing recognition of the need to include children and young people (CYP) in health research. Increasingly, funding bodies emphasise early engagement with those with lived experience, and to recruit participants who represent the diversity of the remit of the study. People with life-limiting conditions are typically under-represented in research because of their perceived vulnerability and as such, key voices are not represented in the research on which practice is based. While effective recruitment strategies can begin to address the breadth of CYP participating in research, data collection methods must meet their diverse needs, experiences, ages, stages of development and values to maximise the likelihood of engagement and involvement. We will outline participatory research methods aimed at facilitating CYP contribution to studies, drawing on our research and experiences of working with CYP with life-limiting conditions.

    Engaging CYP with life-limiting conditions in research

    Together for Short Lives and the Association for Paediatric Palliative Medicine established a joint research group to promote evidence-based practice for CYP with life-limiting conditions.1 The group promotes how ethics committees and editorial boards should consider the approaches researchers take …

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    Footnotes

    • X @ARodriguez339, @MJTatterton, @josmith175

    • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

    • Competing interests None declared.

    • Provenance and peer review Not commissioned; internally peer reviewed.