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Commentary on: Gustafson CM, Higgins M, Wood KA, Song MK. Place of death for young adults with chronic illness. Nurs Res. 2023 Jul 11. doi: 10.1097/NNR.0000000000000681. Epub ahead of print.
Implications for practice and research
Clinicians must communicate with young adults (YAs) throughout their disease course about end-of-life care preferences, including place-of-death.
Future research must explore YAs’ preferences for place-of-death.
Young adults (YAs) with serious illnesses report wanting choices in their end-of-life care.1–3 Where YAs would prefer to die is highly personal, though some studies have reported that many YAs prefer home-based palliative care and death.2 3 Yet, many YAs experience high-intensity, inpatient care at the end of their lives,4 with approximately half of YAs with cancer dying in hospital.4 Factors influencing these patterns of care—and the extent to which care is congruent with YA patient/family preferences—remain understudied.
Gustafson and …
Funding US-D is supported by an Early Career Fellowship from the Cancer Institute of New South Wales (ID: 2020/ECF1163).
Competing interests None declared.
Provenance and peer review Commissioned; internally peer reviewed.