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Patient and Family-Centred Care (PFCC) as an evidence-based framework for optimising the acute healthcare experiences of families of young people with autism
  1. Adam Clifford1,
  2. Penelope Jane Standen2
  1. 1Specialist Services Directorate, Nottinghamshire Healthcare NHS Foundation Trust, Nottingham, Nottinghamshire, UK
  2. 2School of Medicine, University of Nottingham, Nottingham, Nottinghamshire, UK
  1. Correspondence to Adam Clifford, Specialist Services Directorate, Nottinghamshire Healthcare NHS Foundation Trust, Nottingham NG3 6AA, UK; adam.clifford{at}

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Commentary on: Nicholas DB, Muskat B, Zwiagenbaum L, et al. Patient- and Family-Centered Care in the emergency department for children with autism. Pediatrics 2020;145 (Supp 1) S93–8.

Implications for practice and research

  • Young people with autism are more likely to attend the Emergency Department (ED) for a mental health, physical or behavioural concern than the general population.

  • This study applies principles of Patient and Family-Centered Care (PFCC) to interview data from previous research to develop understandings into the ED experiences of parents, physicians and nurses in relation to children with autism.


The healthcare of people with learning disabilities and autism has been the focus of increased attention in recent decades. This has been driven largely by evidence that this group experience a higher prevalence of physical and mental health complexities than the general population, whilst also being vulnerable to a range of health …

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  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.