Implications for practice and research

• Evidence suggests that family caregivers desire a need for greater family involvement in end-of-life care provision.

• More research is required to determine the best approach to involve family caregivers in end-of-life decision making in a culturally sensitive environment.

• The development of an end-of-life practice framework centred within the caregiver–patient dyad could improve family experiences of good end-of-life care.

Context

Although end-of-life care is focused primarily on the needs of the patient, informal family caregivers are often neglected as key stakeholders in holistic end-of-life care. This is despite the potential of informal family caregivers to shape end-of-life care practices. With increasing …