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Nursing issues
Help seeking increases stress among caregivers of partners with young-onset dementia
  1. Gareth, S Parsons
  1. Correspondence to Dr Gareth and S Parsons, School of Care Sciences, University of South Wales Faculty of Life Sciences and Education, Pontypridd, UK; gareth.parsons{at}

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Commentary on: Kobiske KR, Bekhet AK, Garnier-Villarreal M, et al. Pre-death grief, resourcefulness, and perceived stress among caregivers of partners with young-onset dementia. West J Nurs Res 2018:193945918806689.

Implications for practice and research

  • Carers of partners with young-onset dementia have strong perceptions of stress associated with predeath grief which are worsened by help seeking behaviours.

  • Carers of partners with young-onset dementia have different support needs from those with older onset dementia. Provision of services need to reflect these differences.


Young-onset dementia (YOD) is the development of dementia before the age of 65.1 The carers of partners with YOD face a dynamic situation of continual, multiple and diverse loss. The loss of loved ones, as dementia progressively affects their partners and loss of identity and personal freedom are threats to working life and companionship. Many are of working age and lack social …

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  • Competing interests Lead applicant for a research grant to Marie Curie on the preparedness of people with Down syndrome to deal with the end-of-life care implications of a diagnosis with dementia.

  • Provenance and peer review Commissioned; internally peer reviewed.

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