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Interpretive descriptive study.
A city in western Canada.
12 Euro-Canadians (83% women) who were 33–54 years of age, had been diagnosed with MS ⩾5 years ago, and were seeking healthcare services to help them live with their disease. 7 were unemployed because of their chronic condition, 3 were employed, 1 was on leave of absence, and 1 was a student. 6 had been professionals (3 healthcare professionals).
Participants were interviewed face to face for 1–2 hours. Interviews were audiotaped verbatim, and transcripts were coded for conceptual themes. A focus group interview with 8 participants was used to validate, clarify, and refine findings. 3 healthcare professionals who cared for people with MS participated in validation interviews to confirm that the logic of the participants’ perspectives would have credibility with a health professional audience.
Participants emphasised that communication with healthcare providers affected …
For correspondence: Dr S Thorne, University of British Columbia School of Nursing, Vancouver, British Columbia, Canada.
Source of funding: British Columbia Medical Services Foundation.