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Qualitative
Practitioners' actions inhibited patient participation in self care decision making

https://doi.org/10.1136/ebn.5.2.62

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    Paterson B.Myth of empowerment in chronic illness.J Adv Nurs2001 Jun;34:574–81OpenUrlCrossRefPubMedWeb of Science

    QUESTION: How do people with long standing type 1 diabetes mellitus manage self care decision making and relationships with practitioners?

    Design

    Grounded theory, guided by symbolic interactionism.

    Setting

    Vancouver, British Columbia, Canada.

    Participants

    22 Caucasian adults (mean age 43 y, 64% women) with type 1 diabetes of ≥15 years' duration (mean 30 y) who nominated themselves or were nominated by their physicians as expert self care managers (ie, able to make trustworthy decisions about self management and to maintain good glycaemic control).

    Methods

    Data were collected from audiotaped think aloud periods, in which participants described their self care decision making over three 1 week periods; individual interviews held before and after think aloud periods; and a 2 hour focus group interview at the study conclusion. Transcripts of think aloud periods were used to develop interview prompts. All transcripts were analysed using constant comparative …

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    Footnotes

    • Source of funding: BC Health Research Foundation.

    • For correspondence: Dr B Paterson, School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada. paterson{at}nursing.ubc.ca