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Qualitative
Families with parents and children living with HIV described strategies to meet 3 common goals for normalisation

https://doi.org/10.1136/ebn.4.3.92

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    Rehm RS, Franck LS.Long-term goals and normalization strategies of children and families affected by HIV/AIDS.Adv Nurs Sci2000 Sep;23:69–82OpenUrlCrossRefPubMed

    QUESTION: What are the long term goals and normalisation strategies of families with parents and children living with HIV?

    Design

    Interpretive study based on symbolic interaction and using ethnographic data collection methods.

    Setting

    Urban paediatric referral centre in the US.

    Participants

    21 participants: 9 children with HIV infection (age range 7–15 y), 6 mothers and 1 father with HIV infection (mean age 38 y), and 5 uninfected adult family member caregivers (age range 30–79 y). Participants were of diverse ethnicity.

    Methods

    Semistructured, open ended interviews were conducted individually for children (20–45 min) and adults (60–120 min), except for 1 mother and son who requested to be interviewed together. The interview guide included questions on family composition, disease disclosure, and symptom management. Interviews were audiotaped, transcribed verbatim, and data were analysed using constant comparison. Repeat interviews with 4 key participants validated and expanded findings.

    Main findings

    Families had 3 goals to establish …

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    Footnotes

    • Source of funding: AIDS Clinical Research Center, University of California at San Francisco.

    • For correspondence: Dr R S Rehm, College of Nursing, University of New Mexico, Albuquerque, New Mexico 89131–1061, USA. Fax +1 505 272 8901.