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Adults living with Type 1 diabetes experienced transformation as an evolving process of responding to illness related challenges and as an outcome of a differentiation of self and body

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QUESTION: How and why does the phenomenon of transformation occur in the lives of people with Type 1 diabetes?


Emergent design based on grounded theory.


British Columbia, Canada.


22 people (age range 24–81 y, 64% women, all white) who were ≥18 years of age, had Type 1 diabetes for ≥15 years, spoke English, and lived in British Columbia. All participants were competent in diabetes self care management and had good glycaemic control.


Data were collected over 2 years. For 3 one week periods, participants recorded decisions they made about diabetes related issues (eg, insulin, skin care) as they were made, using handheld, voice activated tape recorders. Participants were also interviewed at recruitment and within 1 week of each think-aloud recording session (total of four 2 hour interviews). Finally, 2 hour focus groups of 5–8 participants were held to share the findings and to verify the …

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  • Source of funding: British Columbia Health Research Foundation.

  • For correspondence: Dr B Paterson, School of Nursing, University of British Columbia, 2211 Wesbrook Mall, Vancouver, British Columbia V6T 2B5, Canada. Fax +1 604 822 7466.