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  • Qualitative research augments quantitative analyses on caregiver burden in Parkinson’s disease: expanding the horizon of predefined constructs

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Adult nursing
Qualitative research augments quantitative analyses on caregiver burden in Parkinson’s disease: expanding the horizon of predefined constructs
  1. Victor J Geraedts1,
  2. Anne A van der Plas2
  1. 1 Neurology, Leiden University Medical Center, Leiden, The Netherlands
  2. 2 Neurology, Alrijne Care Group, Leiderdorp, Zuid-Holland, The Netherlands
  1. Correspondence to Dr Victor J Geraedts; v.j.geraedts{at}lumc.nl

https://doi.org/10.1136/ebnurs-2023-103835

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    Commentary on: Geerlings AD, Kapelle WM, Sederel CJ, Tenison E, Wijngaards-Berenbroek H, Meinders MJ, Munneke M, Ben-Shlomo Y, Bloem BR, Darweesh SKL. Caregiver burden in Parkinson’s disease: a mixed-methods study. BMC Med. 2023 Jul 10;21(1):247. doi: 10.1186/s12916-023-02933-4.

    Implications for practice and research

    • Qualitative exploration of caregiver burden provides new themes underlying the mechanisms of caregiver burden, towards improving patient/caregiver monitoring and earlier implementation of interventions to prevent caregiver overload.

    • Integrating quantitative and qualitative strands offers a more comprehensive view on caregiver burden in Parkinson’s disease (PD).

    Context

    Providing informal care for patients with PD is challenging and may be accompanied by caregiver burden. Various factors associated with an increased risk of caregiver burden have been described previously, for example, severity of motor impairment and neuropsychiatric symptoms. However, these metrics are based on predefined constructs such as questionnaires or rating scales, thereby limiting in-depth. …

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    Footnotes

    • Competing interests None declared.

    • Provenance and peer review Commissioned; internally peer reviewed.