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Shared decision-making instead of physician-led end-of-life decision-making for children with life-limiting conditions
  1. Seyed Qasem Mousavi1,2,
  2. Salman Barasteh1,2
  1. 1 Health Management Research Center, Baqiyatallah University of Medical Sciences, Tehran, Iran
  2. 2 Nursing Faculty, Baqiyatallah University of Medical Sciences, Tehran, Iran
  1. Correspondence to Dr Salman Barasteh, Health Management Research Center, Baqiyatallah University of Medical Sciences, Tehran, Iran; s.barasteh{at}gmail.com

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Commentary on: Vemuri S, Hynson J, Williams K, Gillam L. Navigating two ‘truths’: a qualitative study of physician-led end-of-life decision-making for children with life-limiting conditions. Arch Dis Child. 2023 Sep;108(9):725-729. doi: 10.1136/archdischild-2022-324963. Epub 2023 May 15.

Commentary

Implications for practice and research

  • Shared decision-making instead of only physician-led end-of-life decision-making for children with life-limiting conditions protect the parents from the burden of decision-making.

  • Explanation of the factors influencing each stage of the decision-making of paediatricians is needed.

Context

End-of-life decision-making in children is a complex process because three parties are involved: the child, their parents and the physician.1 There is lack of clarity in the literature as to whether decisions are shared between child and physician, parent and physician, or between all.

But in children with life-limiting conditions (LLCs) who are unable to …

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Footnotes

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.