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Refusal of care behaviours among people with major neurocognitive disorder highlight the need for multiple research approaches to account for the complexity of the phenomenon
  1. Stephanie Daneau1,2,
  2. Isabelle Auclair2
  1. 1 Department of Nursing, Université du Québec à Trois-Rivières, Drummondville, Québec, Canada
  2. 2 Faculty of Nursing, Université de Montréal, Montreal, Quebec, Canada
  1. Correspondence to Dr Stephanie Daneau, Faculty of Nursing, Université de Montréal, Montréal, Québec, Canada; stephanie.daneau{at}

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Commentary on: Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023 Jan;38(1): e5857. doi: 10.1002/gps.5857.

Implications for practice and research

  • To promote caregivers’ capacity for action, the occurrence of refusal of care in people living with a major neurocognitive disorder (NCD) can be conceptualised as a need for the caregiver to adapt the care offered, its characteristics and/or the approach used.

  • Further research should address the relationship between agitation and refusal of care in people with an NCD, while considering its complexity, to reduce both behaviours.


Refusal of care or resistance to care is the terms frequently used to describe people living with a major NCD refusing care verbally or physically. As people with an NCD have significant cognitive impairment, these behaviours are common and have an impact on the relationship between …

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  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.