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Care workers of people with intellectual and developmental disabilities feel the need for soft skills training to accomplish better palliative care deliverance
  1. Cristina Pinto1,2,
  2. Sara Pinto3,4
  1. 1 Palliative Care, Centro Hospitalar de Entre o Douro e Vouga EPE, Santa Maria da Feira, Portugal
  2. 2 FMUP, Porto, Portugal
  3. 3 Escola Superior de Saúde de Santa Maria, Porto, Portugal
  4. 4 Center for Health Technology and Services Research, Porto, Portugal
  1. Correspondence to Dr Cristina Pinto, Palliative Care, Centro Hospitalar de Entre o Douro e Vouga EPE, Santa Maria da Feira, Portugal; cristinateixeirapinto{at}gmail.com

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Implications for practice and research

  • Direct care workers (DCWs) of people with intellectual and developmental disabilities (PWIDD) need more training regarding effective communication, spiritual, social and emotional needs, cultural competence to support people from diverse cultural backgrounds, as well post-death logistics and legal matters.

  • Useful recommendations are is provided to prepare training programs for DCWs of PWIDD. Future research could include creative and engaging models in developing more personalised training programmes.

Context

DCWs dealing with PWIDD are increasingly required to provide basic palliative care (PC) assistance. Being an active part of the patient’s care team, they should be informed about the care plan and advance directives for the patient and trained to assist in these matters.1 This study2 aims to assess the perceived needs in PC training for DCWs of PWIDD and their training preferences, in order to develop a personalised training …

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Footnotes

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.

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