Article Text

Download PDFPDF
Living with long Covid: some reflections 14 months down the line
  1. Alison Twycross
  1. Health, Wellbeing and Social Care, The Open University, Milton Keynes, UK
  1. Correspondence to Dr Alison Twycross, The Open University, Milton Keynes, MK7 6AA, UK; alison.twycross{at}

Statistics from

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.

As I write this editorial, it is almost 14 months since I first developed COVID-19 symptoms and my journey with long COVID-19 continues. In their guideline on long COVID-19 NICE/SIGN define post-COVID-19 syndrome as signs and symptoms that develop during or after a COVID-19 infection, continuing for more than 12 weeks, and not explained by an alternative diagnosis. More information about long COVID-19 can be found in the blog written by @jakesuett and me in September 2020. Data from the Office for National Statistics in April 2021 estimated that 1.1 million people in the UK reported experiencing some form of long COVID-19 symptoms. Despite this, the UK Government continues to focus on the outcomes of COVID-19 being binary: dying or surviving. Box 1 provides details about some useful sources of information on long COVID-19.

Box 1

Useful sources of information about long Covid

  • NICE/SIGN rapid guideline published in December 2020.

  • The NIHR review of evidence: living with Covid-19—second Review (March 2021).

  • Paper in nature in April 2021 provides a summary of how post acute Covid-19 (long Covid) can affect different organ systems.

  • Paper published in March 2021 describing the range of signs …

View Full Text


  • Twitter @alitwy

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.