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Care of the older person
Family caregivers expect a patient and family centric approach in holistic end-of-life provision
  1. Yongxing Patrick Lin,
  2. Jia Ning Loi
  1. Department of Nursing Service, Tan Tock Seng Hospital, Singapore
  1. Correspondence to Mr Yongxing Patrick Lin, Department of Nursing Service, Tan Tock Seng Hospital, Singapore 308433, Singapore; patrick_y_lin{at}

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Commentary on: Gonella S, Basso I, De Marinis MG, et al. Good end-of-life care in nursing home according to the family carers’ perspective: a systematic review of qualitative findings. Palliat Med 2019;33(6):589-606. doi: 10.1177/0269216319840275

Implications for practice and research

  • Evidence suggests that family caregivers desire a need for greater family involvement in end-of-life care provision.

  • More research is required to determine the best approach to involve family caregivers in end-of-life decision making in a culturally sensitive environment.

  • The development of an end-of-life practice framework centred within the caregiver–patient dyad could improve family experiences of good end-of-life care.


Although end-of-life care is focused primarily on the needs of the patient, informal family caregivers are often neglected as key stakeholders in holistic end-of-life care. This is despite the potential of informal family caregivers to shape end-of-life care practices. With increasing …

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  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.