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Time to increase the involvement of persons with intellectual disability in palliative care and research
  1. Linda Johansson
  1. Institute of Gerontology, Jönköping University, Jonkoping, Sweden
  1. Correspondence to Associate professor Linda Johansson, Institute of gerontology, Jönköping University, Jonkoping 551 11, Sweden; linda.johansson{at}

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Commentary on: Voss H, Vogel A, Wagemans AMA, et al. Advance care planning in the palliative phase of people with intellectual disabilities: analysis of medical files and interviews. J Intellect Disabil Res. 2019;63:1262–72.

Implications for practice and research

  • Palliative care among people with intellectual disabilities was seldom documented; when documentation occurred this was often close to death.

  • This implies a need for education among professionals and development of policies to diminish inequality of care.

  • To improve the palliative care there is a need of increased involvement of the persons with intellectual disability, which is also true for future research in the field.


People with intellectual disabilities (ID) are living longer resulting in more age-related conditions and prolonged ill-health1 and an increased need for palliative care. The palliative care needs …

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  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.