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Commentary on: Dallas RH, Kimmel A, Wilkins ML, et al. Acceptability of family-centered advanced care planning for adolescents with HIV. Pediatrics 2016;138: pii: e20161854.
Implications for practice and research
While talking about advance care planning (ACP) with adolescents living with HIV may elicit strong emotions, these conversations are perceived as important, helpful and meaningful.
Future studies would benefit from a tool that assesses readiness and interventions that increase comfort in having ACP discussions with adolescents and their families.
There is limited information regarding advance care planning (ACP) discussions among adolescents compared with adults living with chronic and life-limiting conditions. Despite policy recommendations from the American Academy of Pediatrics and the Institute of Medicine to provide adolescents the opportunity to express their preferences about end-of-life (EOL) care, these conversations often occur too late. Barriers include a belief that such conversations cause …
Competing interests None declared.
Provenance and peer review Commissioned; internally peer reviewed.