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A qualitative study using methods from the phenomenological paradigm.
Parents in 11 families who had an adolescent who was terminally ill.
Data were collected over 2.5 years and included meetings with families 1–3 times each week from the time of consent until after the death of the adolescent. Meetings were held in clinics, hospitals, homes, and the community. Initially, general questions were used to focus on the process families experienced during long term care. Topics included family routine, sharing of household tasks and care of the sick adolescent, financial management, supports, and the adolescent's contact with friends and the educational system. Data were …
Source of funding: none stated.
For correspondence: Dr Ilana Hayout, 5 Pinsker Street, Ra'anana 43270, Israel.