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Implications for practice and research
Coordinated effort and improved communication between health professionals and family caregivers may reduce the burden and vulnerability of caregivers when caring for a child with cancer.
Caregivers’ responsibilities were categorised as ‘managing competing knowledge’, ‘vigilance’, ‘advocacy’, ‘balancing parental work’ and ‘burden of treatments’, and provide a useful framework for future research.
The advances in the clinical treatment of cancer have led to greater survival rates, and with fewer deaths there is an increase in the number of patients requiring treatment in the home. This has led to a significant increase in the number and importance of family caregivers.1 ,2 Although health professionals work with children and young people …
Competing interests None.