Statistics from Altmetric.com
J N Stinson
Dr J N Stinson, University of Toronto and Hospital for Sick Children, Toronto, Ontario, Canada; firstname.lastname@example.org
What are the self-management needs of adolescents with juvenile idiopathic arthritis (JIA) and the acceptability of a web-based self-management programme?
Descriptive exploratory qualitative study.
4 rheumatology clinics in paediatric tertiary care centres in Canada.
36 adolescents 12–20 years of age (mean age 15 y, 67% women) who had JIA. Exclusion criteria were major cognitive impairment and comorbid medical or psychiatric illness.
Adolescents participated in individual semi-structured interviews lasting 20–40 minutes (n = 25) or focus groups lasting 40–75 minutes (n = 11). Interviews were audiotaped, transcribed verbatim, and analysed for themes using an iterative process.
Adolescents developed self-management strategies by “letting go” of parents or care providers who had previously managed their disease. 2 main strategies were acquiring knowledge and skill to manage the disease and experiencing understanding through social support. (1) Acquiring knowledge and skill to manage the disease involved …
Source of funding: Canadian Arthritis Network.
If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.