Reconstructing reality: Family strategies for managing childhood cancer+

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The purpose was to describe strategies used by the family in response to childhood cancer and to relate those strategies to two different conceptual frameworks. A longitudinal, prospective, grounded theory study was conducted with a sample of 32 members of seven families who had a child recently diagnosed with cancer. All family members 5 years and older participated in three semistructured home interviews. Constant comparative analysis was used. The core process in which families engaged was reconstructing reality, using strategies of managing the flow of information, reorganizing roles, evaluating and shifting priorities, changing the future orientation, assigning meaning to the illness, and managing the therapeutic regimen. These strategies support a Family Management Style framework for viewing family management of pediatric cancer.

References (33)

  • BirenbaumL.K.

    State of the science: Family research in peciatric oncology nursing

    Journal of Pediatric Oncology Nursing

    (1995)
  • FifeB. et al.

    The family's adaptation to childhood leukemia

    Social Science in Medicine

    (1987)
  • KnaflK. et al.

    Family response to chronic childhood illness: Description of management styles

    Journal of Pediatric Nursing

    (1996)
  • AtwoodJ.R. et al.

    Heuristic heresy: Application of reliability and validity criteria to products of grounded theory

    Western Journal of Nursing Research

    (1986)
  • BenolielJ.Q.

    Childhood diabetes: The commonplace in living becomes uncommon

  • BreitmayerB.J. et al.

    Social competence of school-aged children with chronic illness

    Journal of Pediatric Nursing

    (1992)
  • BreitmayerB.J. et al.

    Parents' views of their role in helping children adjust to diabetes

  • BrettK.M. et al.

    “What does it mean?” Sibling and parental appraisals of childhood leukemia

    Cancer Nursing

    (1988)
  • Clarke-SteffenL.

    The experience of families when a child is diagnosed with cancer with a favorable prognosis

  • Clarke-SteffenL.

    A model of the family transition to living with childhood cancer

    Cancer Practice

    (1993)
  • Clarke-SteffenL.

    Waiting and not knowing: The diagnosis of cancer in a child

    Journal of Pediatric Oncology Nursing

    (1993)
  • CohenM.H.

    The unknown and the unknowable-Managing sustained uncertainty

    Western Journal of Nursing Research

    (1993)
  • CohenM.H.

    The stages of the prediagnostic period in chronic, life-threatening childhood illness: A process analysis

    Research in Nursing and Health

    (1995)
  • DeatrickJ.A. et al.

    Management behaviors: Day-to-day adjustments to childhood chronic conditions

    Journal of Pediatric Nursing

    (1990)
  • DeatrickJ.A. et al.

    The meaning of caregiving behaviors: Inductive approaches to family theory development

  • GlaserB.G.

    Theoretical sensitivity

    (1978)
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    +

    This article reports findings from a doctoral dissertation done at the Oregon Health Sciences University that were presented in part at the Third National Cancer Nursing Research Conference, Newport Beach, CA, January 27, 1994.

    Supported by D.H.H.S., P.H.S., National Center for Nursing Research National Research Service Award No. NR06157; Sigma Theta Tau Beta Psi Chapter Research Award; and a Transitions Focal Area, Oregon Health Sciences University Small Grant. Manuscript preparation supported by D.H.H.S., P.H.S., National Center for Nursing Research National Research Service Award, No. NR07036.

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