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Ethnography
Parents of British Bangladeshi children undergoing cancer treatment report managing competing knowledge, vigilance, advocacy, balancing work and treatment burden impacts on their lives
  1. Tony Cassidy
  1. School of Psychology, University of Ulster, Coleraine, Northern Ireland
  1. Correspondence to: Dr Tony Cassidy, School of Psychology, University of Ulster, Coleraine BT52 1SA, Northern Ireland; t.cassidy{at}ulster.ac.uk

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Implications for practice and research

  • Coordinated effort and improved communication between health professionals and family caregivers may reduce the burden and vulnerability of caregivers when caring for a child with cancer.

  • Caregivers’ responsibilities were categorised as ‘managing competing knowledge’, ‘vigilance’, ‘advocacy’, ‘balancing parental work’ and ‘burden of treatments’, and provide a useful framework for future research.

Context

The advances in the clinical treatment of cancer have led to greater survival rates, and with fewer deaths there is an increase in the number of patients requiring treatment in the home. This has led to a significant increase in the number and importance of family caregivers.1 ,2 Although health professionals work with children and young …

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