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Qualitative
Parents of terminally ill adolescents experienced changed parental roles and a distorted time world

https://doi.org/10.1136/ebn.2.4.132

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    Hayout I, Krulik T. A test of parenthood: dilemmas of parents of terminally ill adolescents.Cancer Nurs1999 Feb; 22:71–9.OpenUrlCrossRefPubMedWeb of Science

    Question What are the processes used by parents of adolescents who are terminally ill with cancer for understanding perceptions of time and parenting?

    Design

    A qualitative study using methods from the phenomenological paradigm.

    Setting

    Israel.

    Participants

    Parents in 11 families who had an adolescent who was terminally ill.

    Methods

    Data were collected over 2.5 years and included meetings with families 1–3 times each week from the time of consent until after the death of the adolescent. Meetings were held in clinics, hospitals, homes, and the community. Initially, general questions were used to focus on the process families experienced during long term care. Topics included family routine, sharing of household tasks and care of the sick adolescent, financial management, supports, and the adolescent's contact with friends and the educational system. Data were …

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    Footnotes

    • Source of funding: none stated.

    • For correspondence: Dr Ilana Hayout, 5 Pinsker Street, Ra'anana 43270, Israel.