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The expert patient
  1. Nóirín O'Neill1,
  2. Gary Mitchell2,
  3. Alison Twycross3
  1. 1Fellow of the European Patients’ Academy, London, UK
  2. 2Four Seasons Health Care, Northern Ireland, UK
  3. 3School of Health and Social Care, London South Bank University, London, UK
  1. Correspondence to : Nóirín O'Neill
    C/O Four Seasons Health Care, Irish Regional Office, 1st Floor, Galway House, Yorkgate Business Park, York Street, Belfast, BT15 1AL, Northern Ireland. noirino{at}gmail.com

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Background

The European Patients’ Academy (EUPATI) is a pan-European Innovative Medicines Initiative project of 33 organisations, led by the European Patients’ Forum with partners from patient organisations (the European Genetic Alliance, the European AIDS Treatment Group and EURORDIS), universities and not-for-profit organisations, along with a number of European pharmaceutical companies. EUPATI aims to help patients to be more educated and involved in the research and development process of new medicines, by offering reliable, objective, comprehensive lay-friendly information and training on the research and development process of medicines. EUPATI increases the capacity of patients to be effective advocates with meaningful involvement in areas like drug discovery and non-clinical testing, planning and conduct of clinical trials, regulatory affairs, assessment of safety of medicines, benefit-risk assessment, as well as principles of health technology assessment. The first EUPATI Patient Expert …

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