Evid Based Nurs 12:95 doi:10.1136/ebn.12.3.95
  • Qualitative

Patients with end-stage COPD did not ask for help because they felt normal and did not realise the situation could be improved


Why do patients with end-stage chronic obstructive pulmonary disease (COPD) not actively ask for help?


Qualitative study with semistructured interviews.


Outpatient clinics in 4 hospitals and 1 specialist centre in the Netherlands.


A purposeful sample of 11 patients 61–83 years of age (73% men) who had Global Initiative for Chronic Obstructive Lung Disease stage IV COPD were identified from a sample of 82 patients from a quality of life study.


In-depth semistructured interviews were conducted, each lasting 1.5–2.5 hours. The first question asked was “Can you describe a normal day?” Other topics included activities of daily living, medical and informal care, social support, stigmatisation, anxiety, and the future. Interviews were audiotaped, transcribed, and analysed using an iterative process.


Patients with end-stage COPD had both physical and social limitations. Breathlessness and anxiety were the most common physical limitations. Patients were afraid of suffocating because of severe breathlessness. As a result of physical limitations, patients became less mobile. They did not leave their houses in …

No Related Web Pages

Free Sample

This recent issue is free to all users to allow everyone the opportunity to see the full scope and typical content of EBN.
View free sample issue >>

EBN Journal Chat

The EBN Journal Chat offers readers the opportunity to participate in discussion about research articles and commentaries from Evidence Based Nursing (EBN).

How to participate >>

Don't forget to sign up for content alerts so you keep up to date with all the articles as they are published.

Navigate This Article