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Carers living with stroke survivors who were incontinent had minimal social interaction and felt socially isolated

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K R Brittain

Dr K R Brittain, Newcastle University, Newcastle upon Tyne, UK; katie.brittain@ncl.ac.uk

QUESTION

What are the social consequences for informal carers who live with stroke survivors who have urinary incontinence?

DESIGN

In-depth interviews analysed by constant comparison.

SETTING

Homes of stroke survivors.

PARTICIPANTS

Purposive sample of 20 carers 51–86 years of age (65% women) who lived in the same house and provided care to stroke survivors with incontinence for 7 months to 18 years without remuneration; most were spouses, partners, or daughters of care recipients (CRs). Carers were recruited from a UK Medical Research Council Incontinence study and a local Family Support Office.

METHODS

Carers were interviewed for 45–90 minutes on topics including physical role of carer, effect of caring for someone with stroke on life of carer, onset of stroke, health problems related to stroke, urinary incontinence and leakage, and the CR’s family. Interviews were tape recorded (except for 1 written record), transcribed verbatim, coded hierarchically, and analysed for …

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