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Facilitated advance care planning in end stage renal disease positively enhanced patients’ hope

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Q What is the influence of advance care planning on hope in patients with end stage renal disease?

DESIGN

Qualitative study using indepth interviews.

SETTING

Outpatient renal programme of a university hospital in Edmonton, Alberta, Canada.

PATIENTS

19 patients 44–88 years of age (mean age 64 y, 58% women) with end stage renal disease. 14 patients were expected to require dialysis within the next 12 months, and 5 patients were currently undergoing dialysis.

METHODS

Patients participated in personal, open ended interviews lasting 60–90 minutes. The interviewer used guiding questions that had been developed in 2 preliminary focus groups to explore patients’ views on prognosis, end of life care, and hope. Interviews were taped, and the transcribed text was coded into synthesised themes using inductive analysis to create an account of hope in the context of advance care planning.

MAIN FINDINGS

Patients’ hopes were shaped by their …

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