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Qualitative
Discovering a sense of difference was the main experience of growing up with cystic fibrosis

https://doi.org/10.1136/ebn.1.4.129

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    D'Auria JP, Christian BJ Richardson LF. Through the looking glass: children's perceptions of growing up with cystic fibrosis.Can J Nurs Res1997 Winter;29:99–112.OpenUrl

    Question How do children with cystic fibrosis (CF) perceive the unfolding of the chronic illness experience?

    Design

    Grounded theory.

    Setting

    Regional CF centre in south east US.

    Patients

    20 children who were 6–12 years of age (mean age 9 y, 60% boys) and had been diagnosed with CF by 3 years of age.

    Methods

    In 30–60 minute audiotaped interviews, children were asked to visualise their experiences of growing up with CF. They were asked to describe their earliest memory and to give advice to a child newly diagnosed with CF. Field notes documented personal characteristics, emotional response, and data collection conditions. Interviews were transcribed, coded, and analysed using the constant comparison method.

    Main results

    The central phenomenon of growing up with CF was discovering a sense of difference. 4 main themes emerged from children's accounts. Puzzling out the meaning described many …

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    Footnotes

    • Source of funding: in part, National Institute for Nursing Research.

    • For correspondence: Dr J P D'Auria, School of Nursing, University of North Carolina at Chapel Hill, CB #7460, Carrington Hall, Chapel Hill, NC 27599–7460, USA. Fax +1 919 966 7298.